A Prayer for Courage

I sit and watch my child go through his third trial on yet another NSAID hoping that this one will help. After having watch him cling to me out of prednisone induced anxiety attack. I watch him limp and listen to him cry because of the painful joints and a painful stomach from medication. I…

Enthesitis Related Arthritis

Something I had been fearing since the beginning of my journey with Psoriatic Arthritis was that my then toddler son would develop an autoimmune condition. When he started having joint pain at three my fear went even higher. We talked with his pediatrician and I journaled his pain and symptoms to spot any patterns that…

Trigeminal Neuralgia

I’m hiding in the bathroom trying to keep from screaming, as it feel as if the side of my face is being ripped off. Doubling over silently banging on the door through the hanging towels. Teeter tottering have to get it together through the ice pick to the temple. Leaning over the sink don’t want…

Things you hear when you are chronically ill.

I’ll admit it’s a bit of a cliche article to write but I have to write it. It’s gnawing on me! Most of the articles you’ll see will focus on the “you don’t look sick” comments which I get….all the time. That’s not what get’s me. People don’t typically know better and they mean well….

Chronic Illness and Organization

Organization…. A bit of a dirty word in my life. I’ve never been great at it. I’ve always seemed to lack that magically organizational gene others seem to possess. Or perhaps as I’m learning it’s more a habit. My newest discovery is Bullet journals. There are many all so fancy one’s floating out there in…

Moving on up!

We are moving so please be patient and don’t mind the mess. Just step over the boxes….we’re still unpacking.

Procrastination and Fatigued a nasty combination!

I may be the world’s worst blog writer. lol(Am I allowed to use text speak in blogging?) Another year nearly gone and I’ve done little to none on my precious blog. More illness, more meds, more fun. Oh but there was more fun! More homeschooling, including a new adventuring in taking part in helping to…

Fatigue, Fatigue and oh yeah…more fatigue!

Why is it that so many doctors are uneasy or unwilling to address the fatigue that comes with many Chronic Illnesses? Is it the difficulty in treating it? The hesitancy to add more medication? A lack of knowing exactly how to treat it? Or they just don’t understand how all consuming and difficult it can…

Blissful homeschooling

     We are four weeks into our 2nd full year full year of homeschooling (we had half a year before that after we withdrew him from public kindergarten). So far it is is going amazing.      This is our second year using the Charlotte Mason Method to homeschool. Last year did not go…

Homeschooling in the Outdoors

      While we don’t exactly homeschool year round I do try to take advantage of as many opportunities to further our(because I tend to learn just as much as T does) education.       We had the opportunity to not only take a trip to Glacier National Park but with T’s Aunt(My…

Crazy Frustrating Summer!

A bit of an update of sorts.              T had a decent spring and summer after making a trip to see a pediatric rheumatologist. He was having reoccurring pains that didn’t seem to fit the pattern of “growing pains”. He had pain when waking and throughout the day not just…

My Colonoscopy was a mini vacation.

Not many people would classify their colonoscopy as a vacation, but those of us with chronic pain may. Despite the waiting(which was what I did the majority of my time there) the colonoscopy was not bad. After all they gave me pain meds via IV as well as a sedative..so it was  nice break from…